{"id":14123,"date":"2025-01-22T12:13:37","date_gmt":"2025-01-22T12:13:37","guid":{"rendered":"https:\/\/www.drfz.de\/?post_type=project&p=14123"},"modified":"2025-03-27T15:29:44","modified_gmt":"2025-03-27T15:29:44","slug":"kerndokumentation-rheumakranker-kinder-und-jugendlicher","status":"publish","type":"project","link":"https:\/\/www.drfz.de\/en\/forschungsprojekte\/kerndokumentation-rheumakranker-kinder-und-jugendlicher\/","title":{"rendered":"National Pediatric Rheumatologic Database (NPRD)"},"content":{"rendered":"\n
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More than 60 pediatric rheumatology centers document over 14,000 children and adolescents each year.<\/h2>\n \n \n
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Inflammatory rheumatic diseases are among the most common chronic illnesses in childhood and adolescence. It is estimated that around 20,000 children and adolescents are affected nationwide. Juvenile idiopathic arthritis (JIA) is the most common chronic inflammatory rheumatic disease, with a prevalence of about 100\/100,000 and an incidence of 10\/100,000 children under 16 years old. Additionally, there are children and adolescents with other conditions from the rheumatic spectrum, such as collagenoses, vasculitides, and periodic fever syndromes. The National Pediatric Rheumatologic Database (NPRD) provides information on the clinical presentation of juvenile rheumatic diseases, treatments, and associated outcomes.<\/p>\n <\/div>\n \n

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Wide range of applications<\/h2>\n \n
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Since its introduction, the NPRD has established itself as a nationally and internationally recognized instrument for rheumatology healthcare research. The data collected through it are used for quality assurance (benchmarking), as a data source for scientific inquiries, healthcare analyses, study planning, patient information, and public relations. They aim to highlight the development of pediatric rheumatology care, including current standards, temporal trends, and existing deficiencies, as well as to describe the subjective and objective disease burden of rheumatic conditions in childhood and adolescence. In this way, the Kinder-KD can contribute to improving the healthcare situation for children and adolescents with rheumatic diseases.<\/p>\n <\/div>\n <\/div>\n\n \n <\/div>\n <\/div>\n\n <\/section>\n\n\n\n\n

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