{"id":14381,"date":"2025-01-31T10:14:55","date_gmt":"2025-01-31T10:14:55","guid":{"rendered":"https:\/\/www.drfz.de\/?post_type=project&#038;p=14381"},"modified":"2025-03-30T17:27:16","modified_gmt":"2025-03-30T17:27:16","slug":"improving-the-health-of-children-and-adolescents-with-autoinflammatory-diseases-aid","status":"publish","type":"project","link":"https:\/\/www.drfz.de\/en\/forschungsprojekte\/improving-the-health-of-children-and-adolescents-with-autoinflammatory-diseases-aid\/","title":{"rendered":"Improving the health of children and adolescents with autoinflammatory diseases (Pro-AID)"},"content":{"rendered":"\n  <section id=\"block_e2fc5018c808f253e8cd589dee612c7f\" class=\"section logo-grid  alignwide \">\n    <div class=\"container container--center\">\n                        <h2 class=\"section__heading launimation slideBottom\">Cooperation partners<\/h2>\n        \n                  <div class=\"section__description wysiwyg launimation slideBottom\">PRO-AID is a sub-project of the PRO-Kind initiative of the GKJR, which promotes effective diagnostics and targeted treatment of rheumatic diseases in children and adolescents. <br \/>\r\nThe PRO-AID consortium includes the PRO-Kind consortium and those responsible for the development of the consensus-based protocols: the DRFZ, the University Children&#8217;s Hospital of Basel, the Autoinflammation Reference Center T\u00fcbingen (arcT), the Department of Pediatrics and Adolescent Medicine at RWTH Aachen University, the Asklepios Clinic Sankt Augustin, the University Hospital M\u00fcnster, and the Charit\u00e9 \u2013 Universit\u00e4tsmedizin Berlin, Department of Pediatrics, Division of Pneumology, Immunology and Intensive Care.<br \/>\r\nPatient representatives from the Deutsche Rheuma-Liga and the FMF &amp; AID Global Association are actively involved in the project. The network is currently cooperating with 11 pediatric rheumatology centers.<br \/>\r\n<br \/>\r\n<br \/>\r\n<\/div>\n              \n      <div class=\"logo-grid__logos\">\n        <div class=\"logo-grid__logo launimation slideBottom\"><a href=\"https:\/\/www.kindness-for-kids.de\/\" target=\"_blank\" class=\"logo-grid__logo-inner\"><img decoding=\"async\" loading=\"lazy\" sizes=\"auto, \" src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Kidness-for-Kifs_Logo-neu-1-mit-Schrift-150x84.jpg\" data-src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Kidness-for-Kifs_Logo-neu-1-mit-Schrift-1024x573.jpg\" data-srcset=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Kidness-for-Kifs_Logo-neu-1-mit-Schrift-1920x1075.jpg 1920w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Kidness-for-Kifs_Logo-neu-1-mit-Schrift-1600x896.jpg 1600w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Kidness-for-Kifs_Logo-neu-1-mit-Schrift-1366x765.jpg 1366w, 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https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/UKM_LOGO_2-768x186.jpg 768w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/UKM_LOGO_2-550x133.jpg 550w\" class=\"logo-grid__logo-image\" alt=\"\"  width=\"1024\"  height=\"248\"><\/a><\/div><div class=\"logo-grid__logo launimation slideBottom\"><a href=\"https:\/\/www.charite.de\" target=\"_blank\" class=\"logo-grid__logo-inner\"><img decoding=\"async\" loading=\"lazy\" sizes=\"auto, \" src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite-150x100.jpg\" data-src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg\" data-srcset=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 1920w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 1600w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 1366w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 1024w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 768w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/Charite.jpg 550w\" class=\"logo-grid__logo-image\" alt=\"\"  width=\"300\"  height=\"200\"><\/a><\/div><div class=\"logo-grid__logo launimation slideBottom\"><a href=\"https:\/\/www.gkjr.de\" target=\"_blank\" class=\"logo-grid__logo-inner\"><img decoding=\"async\" loading=\"lazy\" sizes=\"auto, \" src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-150x128.png\" data-src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-1024x876.png\" data-srcset=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-1920x1642.png 1920w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-1600x1369.png 1600w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-1366x1169.png 1366w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-1024x876.png 1024w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-768x657.png 768w, https:\/\/www.drfz.de\/wp-content\/uploads\/2025\/01\/GKJR-Logo_transparrent-550x471.png 550w\" class=\"logo-grid__logo-image\" alt=\"\"  width=\"1024\"  height=\"876\"><\/a><\/div>      <\/div>\n\n    <\/div><!-- container -->\n  <\/section>\n\n\n\n\n  <section id=\"procedures\"\n           class=\"section downloads  alignwide \">\n\n    <div class=\"container container--center\">\n      <div class=\"downloads__wrapper has-header-link\">\n                  <h2 class=\"section__heading launimation slideBottom\">Procedures<\/h2>\n        \n                  <div class=\"section__description wysiwyg launimation slideBottom\"><p>All centers participating in the NPRD are invited to participate. All incident and prevalent patients with autoinflammatory diseases can be included. The project is integrated into clinical routine care; separate visits are not required. After verbal and written informed consent has been obtained from the affected adolescents and\/or legal guardians and the treating physician, a basic questionnaire is completed when the patient is enrolled in the study. A follow-up questionnaire is completed by the adolescents and\/or legal guardians and the treating medical team as part of the regular follow-up checks every 3\u20139 months (at least once a year). The questionnaires are then sent to the DRFZ by email, fax or post.<\/p>\n<\/div>\n        \n                  <div class=\"downloads__files\">\n                          <a href=\"\" download\n                 class=\"h6 downloads__file box over launimation slideBottom\">\n                <span class=\"downloads__file-name\">Study protocol<\/span>\n                <i class=\"icon icon--download\"><\/i>\n              <\/a>\n                          <a href=\"\" download\n                 class=\"h6 downloads__file box over launimation slideBottom\">\n                <span class=\"downloads__file-name\">Informed consent forms and study information for children, adolescents, legal guardians<\/span>\n                <i class=\"icon icon--download\"><\/i>\n              <\/a>\n                          <a href=\"\" download\n                 class=\"h6 downloads__file box over launimation slideBottom\">\n                <span class=\"downloads__file-name\">Baseline questionnaires (adolescents, legal guardians, physicians)<\/span>\n                <i class=\"icon icon--download\"><\/i>\n              <\/a>\n                          <a href=\"\" download\n                 class=\"h6 downloads__file box over launimation slideBottom\">\n                <span class=\"downloads__file-name\">Follow-up questionnaires (adolescents, legal guardians, physicians)<\/span>\n                <i class=\"icon icon--download\"><\/i>\n              <\/a>\n                          <a href=\"\" download\n                 class=\"h6 downloads__file box over launimation slideBottom\">\n                <span class=\"downloads__file-name\">Patient flyer<\/span>\n                <i class=\"icon icon--download\"><\/i>\n              <\/a>\n                      <\/div>\n        \n              <\/div>\n    <\/div><!-- container -->\n\n  <\/section>\n\n\n\n\n  <section id=\"team\"\n           class=\"section accordion  alignwide \"\n           data-open=\"multiple\">\n    <div class=\"container container--center container--medium\">\n              <h2 class=\"h3 section__heading launimation slideBottom\">Team<\/h2>\n      \n      \n      \n              <div id=\"panel-\"\n             class=\"accordion__category active\" role=\"tabpanel\"\n             aria-labelledby=\"tab-\">\n                    <script type=\"application\/ld+json\">\n            {\n              \"@context\": \"https:\/\/schema.org\",\n              \"@type\": \"FAQPage\",\n              \"mainEntity\": [{\"@type\": \"Question\",\"name\": \"Mitarbeitende\",\"acceptedAnswer\": {\"@type\": \"Answer\",\"text\": \"Martina Niewerth,\nNadine Gr\u00f6sch,\nJens Klotsche\"}}]\n            }\n          <\/script>\n\n          <div class=\"accordion__content\">\n                          <div class=\"accordion-item  box box--accordion over launimation slideBottom\">\n                <button class=\"accordion-item__title\"\n                        aria-expanded=\"true\"\n                        aria-controls=\"accordion_69e751b04985a_0\"\n                        aria-label=\"Zeige den Inhalt an\">\n                    <span class=\"accordion-item__title-wrapper\">\n                      <span class=\"accordion-item__title-main h5\">Mitarbeitende<\/span>\n                                          <\/span>\n                  <span class=\"icon-wrapper\"><\/span>\n                <\/button>\n\n                <div class=\"accordion-item__content-container\" id=\"accordion_69e751b04985a_0\">\n                  <div class=\"accordion-item__content\">\n                    \n                    <div class=\"accordion-item__content-text wysiwyg\">\n                      <p>Martina Niewerth,<\/p>\n<p>Nadine Gr\u00f6sch,<\/p>\n<p>Jens Klotsche<\/p>\n\n                                          <\/div>\n                  <\/div>\n                <\/div>\n              <\/div>\n                      <\/div>\n        <\/div>\n          <\/div>\n  <\/section>\n\n\n\n\n\n\n  <section id=\"block_c8f68ec707d2950bbf3489cfe7cbb9b4\" class=\"section cta  alignwide\">\n    <div class=\"container container--center\">\n\n      <div class=\"cta__wrapper bg bg--surface\">\n        <div class=\"cta__content\">\n                      <h2 class=\"cta__heading launimation slideBottom\">AG Minden<\/h2>\n          \n                      <div class=\"cta__desc wysiwyg launimation slideBottom\">Paediatric Rheumatology and Health Services Research<\/div>\n          \n          \n                      <div class=\"cta__ctas button-group\">\n              <a href=\"\/en\/arbeitsgruppen\/kinder-und-jugendrheumatologie\/\" class=\"cta__button button button--arrow launimation slideBottom\" title=\"\" target=\"_self\"><span><\/span><\/a>            <\/div>\n                  <\/div><!-- content -->\n\n                  <div class=\"cta__image launimation fadeIn\">\n            <img decoding=\"async\" loading=\"lazy\" sizes=\"auto, \" src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-150x100.jpg\" data-src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1024x683.jpg\" data-srcset=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1920x1280.jpg 1920w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1600x1067.jpg 1600w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1366x911.jpg 1366w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1024x683.jpg 1024w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-768x512.jpg 768w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-550x367.jpg 550w\" class=\"\" alt=\"DRFZ Kinder- und Jugendrheumatologie Arbeitsgruppe Minden\"  width=\"1024\"  height=\"683\">          <\/div>\n              <\/div><!-- wrapper -->\n\n    <\/div><!-- container -->\n  <\/section>\n\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"author":5,"featured_media":0,"template":"","programme-area-tax":[180],"supporter":[270],"working-group-tax":[252],"class_list":["post-14381","project","type-project","status-publish","hentry","programme-area-tax-programme-area-2","supporter-foundation","working-group-tax-paediatric-rheumatology-and-health-services-research"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Improving the health of children and adolescents with autoinflammatory diseases (Pro-AID) - DRFZ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.drfz.de\/en\/forschungsprojekte\/improving-the-health-of-children-and-adolescents-with-autoinflammatory-diseases-aid\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta 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