{"id":16191,"date":"2025-01-23T13:41:28","date_gmt":"2025-01-23T13:41:28","guid":{"rendered":"https:\/\/www.drfz.de\/?post_type=project&#038;p=16191"},"modified":"2025-03-30T19:31:26","modified_gmt":"2025-03-30T19:31:26","slug":"optimization-of-information-transfer-at-the-pediatric-adult-rheumatology-interface-infotrans","status":"publish","type":"project","link":"https:\/\/www.drfz.de\/en\/forschungsprojekte\/optimization-of-information-transfer-at-the-pediatric-adult-rheumatology-interface-infotrans\/","title":{"rendered":"Optimization of information transfer at the pediatric\/adult rheumatology interface (InfoTrans)"},"content":{"rendered":"\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\">The healthcare situation of young people (ages 16\u201325) with chronic arthritis is being analyzed across multiple work packages. The study assesses their health status, transition skills, and satisfaction with care. Surveys were conducted among BARMER-insured individuals and participants in the 2022 and 2023 National Pediatric Rheumatologic Database (NPRD).Adolescents and young adults in the NPRD receive a digital report of findings for personal reference and to share with their rheumatologist. This data can be integrated into the &#8220;RheDAT&#8221; rheumatology documentation software, which is increasingly used in internal rheumatology. This facilitates the transfer of information from pediatric to adult rheumatology.In addition, the health literacy and disease burden of young people with chronic arthritis are analyzed. Particular attention is paid to whether access to additional information via the diagnostic report leads to a greater increase in knowledge and improved skills in the long term.<\/p>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\"><br><\/p>\n\n\n\n<h2 class=\"wp-block-heading alignwide\" id=\"informationen-zum-uebergang-in-die-erwachsenenrheumatologie\">Further information on the transition to adult rheumatology<\/h2>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\">Further information on the transition to adult rheumatology can be found here:<\/p>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\"><a href=\"https:\/\/kinderkerndokumentation.de\/was-ist-infotrans\/www.mein-rheuma-wird-erwachsen.de\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>\u201eMein Rheuma wird erwachsen\u201c der Deutschen Rheuma-Liga (DRL)<\/strong><\/a><\/p>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\">Comprehensive information and useful tips on rheumatism and the transition from pediatric to adult rheumatology: In addition to helpful videos and checklists, you will also find testimonials from young people who have already successfully made the transition to adult rheumatology and are now available as transition peers to provide you with advice and support.<\/p>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\">Here you can actively search for rheumatologists in your area who provide further care.<\/p>\n\n\n\n<p class=\"alignwide has-text-align-wide wp-block-paragraph\"><a href=\"https:\/\/www.gkjr.de\/fur-patienten-und-familien\/fur-jugendliche\/rheumatologen-fur-junge-erwachsene\/\" target=\"_blank\" rel=\"noreferrer noopener\"><strong>\u201eGesellschaft f\u00fcr Kinder &#8211; und Jugendrheumatologie (GKJR)<\/strong><\/a><\/p>\n\n\n\n  <section id=\"team\"\n           class=\"section accordion  alignwide \"\n           data-open=\"single\">\n    <div class=\"container container--center container--medium\">\n              <h2 class=\"h3 section__heading launimation slideBottom\">Team<\/h2>\n      \n      \n              <div class=\"accordion__filters\">\n          \n<div class=\"pills swiper\" data-has-aria=\"1\" data-event=\"accordionCategoryChanged\">\n  <div class=\"pills__wrap swiper-wrapper\" role=\"tablist\">\n    <button id=\"tab-members\" class=\"pill swiper-slide\" aria-selected=\"true\" aria-controls=\"panel-members\">Members<\/button><button id=\"tab-cooperation-partner\" class=\"pill swiper-slide\" aria-selected=\"false\" aria-controls=\"panel-cooperation-partner\">Cooperation partner<\/button>  <\/div>\n<\/div>\n        <\/div>\n      \n              <div id=\"panel-members\"\n             class=\"accordion__category active\" role=\"tabpanel\"\n             aria-labelledby=\"tab-members\">\n                    <script type=\"application\/ld+json\">\n            {\n              \"@context\": \"https:\/\/schema.org\",\n              \"@type\": \"FAQPage\",\n              \"mainEntity\": [{\"@type\": \"Question\",\"name\": \"Members\",\"acceptedAnswer\": {\"@type\": \"Answer\",\"text\": \"Jens Klotsche\nMartina Niewerth,\nNadine Gr\u00f6sch,\nJana Tomuscheit,\nFlorian Milatz,\"}}]\n            }\n          <\/script>\n\n          <div class=\"accordion__content\">\n                          <div class=\"accordion-item  box box--accordion over launimation slideBottom\">\n                <button class=\"accordion-item__title\"\n                        aria-expanded=\"false\"\n                        aria-controls=\"accordion_69d65fc285838_0\"\n                        aria-label=\"Zeige den Inhalt an\">\n                    <span class=\"accordion-item__title-wrapper\">\n                      <span class=\"accordion-item__title-main h5\">Members<\/span>\n                                          <\/span>\n                  <span class=\"icon-wrapper\"><\/span>\n                <\/button>\n\n                <div class=\"accordion-item__content-container\" id=\"accordion_69d65fc285838_0\">\n                  <div class=\"accordion-item__content\">\n                    \n                    <div class=\"accordion-item__content-text wysiwyg\">\n                      <p>Jens Klotsche<\/p>\n<p>Martina Niewerth,<\/p>\n<p>Nadine Gr\u00f6sch,<\/p>\n<p>Jana Tomuscheit,<\/p>\n<p>Florian Milatz,<\/p>\n<p><\/p>\n\n                                          <\/div>\n                  <\/div>\n                <\/div>\n              <\/div>\n                      <\/div>\n        <\/div>\n              <div id=\"panel-cooperation-partner\"\n             class=\"accordion__category \" role=\"tabpanel\"\n             aria-labelledby=\"tab-cooperation-partner\">\n                    <script type=\"application\/ld+json\">\n            {\n              \"@context\": \"https:\/\/schema.org\",\n              \"@type\": \"FAQPage\",\n              \"mainEntity\": [{\"@type\": \"Question\",\"name\": \"Cooperation partner\",\"acceptedAnswer\": {\"@type\": \"Answer\",\"text\": \"InfoTrans is a joint project between the German Rheumatism Research Center, the BARMER health insurance company and Heidelberg University Hospital. Cooperation partners are 50 pediatric rheumatology centers participating in the NPRD, the German Rheumatism League (Deutsche Rheuma-Liga), the Society for Pediatric and Adolescent Rheumatology (GKJR) and the RheDAT platform of the Professional Association of Rheumatologists (BDRh).\"}}]\n            }\n          <\/script>\n\n          <div class=\"accordion__content\">\n                          <div class=\"accordion-item  box box--accordion over launimation slideBottom\">\n                <button class=\"accordion-item__title\"\n                        aria-expanded=\"false\"\n                        aria-controls=\"accordion_69d65fc285961_0\"\n                        aria-label=\"Zeige den Inhalt an\">\n                    <span class=\"accordion-item__title-wrapper\">\n                      <span class=\"accordion-item__title-main h5\">Cooperation partner<\/span>\n                                          <\/span>\n                  <span class=\"icon-wrapper\"><\/span>\n                <\/button>\n\n                <div class=\"accordion-item__content-container\" id=\"accordion_69d65fc285961_0\">\n                  <div class=\"accordion-item__content\">\n                    \n                    <div class=\"accordion-item__content-text wysiwyg\">\n                      <p>InfoTrans is a joint project between the German Rheumatism Research Center, the BARMER health insurance company and Heidelberg University Hospital. Cooperation partners are 50 pediatric rheumatology centers participating in the NPRD, the German Rheumatism League (Deutsche Rheuma-Liga), the Society for Pediatric and Adolescent Rheumatology (GKJR) and the RheDAT platform of the Professional Association of Rheumatologists (BDRh).<\/p>\n\n                                          <\/div>\n                  <\/div>\n                <\/div>\n              <\/div>\n                      <\/div>\n        <\/div>\n          <\/div>\n  <\/section>\n\n\n\n\n  <section id=\"block_4c147ce9859fc7a9892f96b2dce72c10\" class=\"section cta  alignwide\">\n    <div class=\"container container--center\">\n\n      <div class=\"cta__wrapper bg bg--surface\">\n        <div class=\"cta__content\">\n                      <h2 class=\"cta__heading launimation slideBottom\">AG Minden<\/h2>\n          \n                      <div class=\"cta__desc wysiwyg launimation slideBottom\">Kinder- und Jugendrheumatologie<\/div>\n          \n          \n                      <div class=\"cta__ctas button-group\">\n              <a href=\"\/arbeitsgruppen\/kinder-und-jugendrheumatologie\/\" class=\"cta__button button button--arrow launimation slideBottom\" title=\"\" target=\"_self\"><span><\/span><\/a>            <\/div>\n                  <\/div><!-- content -->\n\n                  <div class=\"cta__image launimation fadeIn\">\n            <img decoding=\"async\" loading=\"lazy\" sizes=\"auto, \" src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-150x100.jpg\" data-src=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1024x683.jpg\" data-srcset=\"https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1920x1280.jpg 1920w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1600x1067.jpg 1600w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1366x911.jpg 1366w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-1024x683.jpg 1024w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-768x512.jpg 768w, https:\/\/www.drfz.de\/wp-content\/uploads\/2024\/12\/Minden_group_2019-550x367.jpg 550w\" class=\"\" alt=\"DRFZ Kinder- und Jugendrheumatologie Arbeitsgruppe Minden\"  width=\"1024\"  height=\"683\">          <\/div>\n              <\/div><!-- wrapper -->\n\n    <\/div><!-- container -->\n  <\/section>\n\n\n\n\n<p class=\"wp-block-paragraph\"><\/p>\n","protected":false},"author":5,"featured_media":10269,"template":"","programme-area-tax":[180],"supporter":[268],"working-group-tax":[252],"class_list":["post-16191","project","type-project","status-publish","has-post-thumbnail","hentry","programme-area-tax-programme-area-2","supporter-innovationsfonds-g-ba-en","working-group-tax-paediatric-rheumatology-and-health-services-research"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.3 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Optimization of information transfer at the pediatric\/adult rheumatology interface (InfoTrans) - DRFZ<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.drfz.de\/en\/forschungsprojekte\/optimization-of-information-transfer-at-the-pediatric-adult-rheumatology-interface-infotrans\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Optimization of information transfer at the pediatric\/adult rheumatology interface (InfoTrans) - DRFZ\" \/>\n<meta property=\"og:description\" content=\"The healthcare situation of young people (ages 16\u201325) with chronic arthritis is being analyzed across multiple work packages. 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