{"id":3454,"date":"2025-01-22T09:13:10","date_gmt":"2025-01-22T09:13:10","guid":{"rendered":"https:\/\/www.drfz.de\/?post_type=working-group&p=3454"},"modified":"2025-06-25T13:18:18","modified_gmt":"2025-06-25T13:18:18","slug":"kinder-und-jugendrheumatologie","status":"publish","type":"working-group","link":"https:\/\/www.drfz.de\/en\/arbeitsgruppen\/kinder-und-jugendrheumatologie\/","title":{"rendered":"Paediatric Rheumatology and Health Services Research"},"content":{"rendered":"\n

Research for a better future<\/strong><\/strong><\/h4>\n\n\n\n

How soon do children and adolescents access pediatric rheumatology care after symptom onset? What treatments are used, and what outcomes are achieved? How safe are new drugs long-term? How well do patients fare in adulthood, and what factors influence the course of the disease?<\/p>\n\n\n\n

Answers to these questions are provided by extensive observational studies, which form the basis of our research. The nationwide cohort studies conducted within our research group form the foundation of our research. These cohorts allow us to track developments over time andObservational studies, such as the national Pediatric Rheumatologic Database (NPRD) and the JuMBO biologics registry, enable us to analyze temporal developments and treatment outcomes. In these studies, we were able to determine that the changes in the drug treatment of affected children, adolescents and young adults were accompanied by increasingly better control of disease activity and an improvement in the quality of life of those affected. Consequential damage to the joints and functional limitations in everyday life have become rarer. Most importantly, our studies have shown that early initiation of treatment is crucial for the long-term prognosis of JIA. The earlier patients are treated effectively, the more often they are free of symptoms and treatment in adulthood.<\/p>\n\n\n\n

\n\n
\n\n \n \n
\n
\n The earlier patients are treated effectively, the more often they are free of symptoms and treatment in adulthood. <\/blockquote>\n
Prof. Dr. med. Kirsten Minden<\/figcaption>\n <\/figure>\n\n <\/div>\n\n <\/section>\n\n\n\n\n
\n
\n
\n
\n

Projects<\/h2>\n <\/div>\n \n \n
\n
\n Go to end of slider<\/a>\n <\/div>\n \n
\n
\n \n
\n
\n \n