EuNeP - European Network of Pregnancy Registers in Rheumatology

The EuNeP project brings together experts from all over Europe who run pregnancy registers in rheumatology. The individual registers collect information on patients with rheumatic diseases who wish to become pregnant, as well as during and after pregnancy, in order to gain more insight into how the rheumatic disease affects the pregnancy and vice versa.

The aim of EuNeP is to analyse the data together in order to increase the power and robustness of the results. As a starting point, the structure of the cooperating registers and their data collection were analysed. Based on this, a core set of data was defined for registers and observational studies that collect data on pregnant women with rheumatic diseases. The first collaborative analysis focused on pregnancies in women with axial spondyloarthritis. Pregnancy complications were shown to be rare and within the expected rates for the general population.

The project was funded by FOREUM – Foundation for Research in Rheumatology from 2017 to 2021. The collaboration will continue beyond the funding period

Duration

2017 – 2021

Website

www.foreum.org

Head of project

strangfeld@drfz.de

Cooperation partners

Department for Rheumatology and Hiller Research Institute, Heinrich Heine University Düsseldorf, Düsseldorf, Germany
Internal Medicine Department and Rheumatology Department, Hospital Cochin, Paris | INSERM, Université de Paris, Paris, France
Department of Clinical and Experimental Sciences, University of Brescia, Brescia, | Unit of Rheumatology and Clinical Immunology, ASST Spedali Civili di Brescia, Brescia, Italy
Institute of Neuromedicine and Movement Science, Faculty of Medicine and Health Sciences, NTNU, Norwegian University of Science and Technology, Trondheim | Norwegian National Advisory Unit on Pregnancy and Rheumatic Diseases, Dept. of Rheumatology, St Olavs Hospital University Hospital Trondheim, Trondheim, Norway
Department of Rheumatology, Cantonal Hospital St. Gallen, St. Gallen, Switzerland

AG Strangfeld

Pharmacoepidemiology

EuNeP – European Network of Pregnancy Registers in Rheumatology

Head of project

Prof. Dr. med. Anja Strangfeld

AG Strangfeld

Selected publications

Pregnancy and neonatal outcomes in women with axial spondyloarthritis: pooled data analysis from the European Network of Pregnancy Registries in Rheumatology (EuNeP).

European Network of Pregnancy Registers in Rheumatology (EuNeP)-an overview of procedures and data collection.

EULAR recommendations for a core data set for pregnancy registries in rheumatology.

AG Strangfeld